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Welcome to the Donation Page for
Mamie Grace Eynon, Born: 2/19/10 - 5/4/10

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In Memory of Mamie Grace

I was about 12 weeks pregnant with twins when I discovered that one of my babies would be born with Down syndrome. I was immediately told that I could have a selective reduction. A doctor could do a procedure that would end my little girlís life and allow her twin brother to go on. It was a horrible thing to think about while still in shock from the news. Upon reflection, the elective procedure should never have suggested. In the eyes of many medical professionals, a child with Down syndrome poses an automatic justification for termination. Just because the baby wasn't "perfect," this person thought it was perfectly okay to make the suggestion. I don't know that it was an option I would have even thought about, had it not been for the very common thought that people with Down syndrome are not worthy.

After a lot of tears and a great deal of thought, we came to peace with our decision to carry on with the pregnancy and embrace both of our children. We knew this little girl would have a huge impact on our sonsí lives and make our family a better one.

In the beginning, we didnít think we would be capable of raising a child with Down syndrome. Boy, were we wrong!

Unfortunately, our society is programmed to believe that people with Down syndrome donít have the same value as others. It's a belief that sadly I also embraced.

We would be lying is we said it was easy to accept our daughter. If we had known more about Down syndrome, our reaction might have been one of joy instead of sadness. Having a child with Down syndrome isnít a curse-- it is, as many parents will tell you, a blessing.

Our blessing didnít last. Sweet Mamie Grace died after suffering complications from heart surgery. Our pain is ever-present and my guilt as a mother for not embracing her from the very beginning continues to this day.

It is my hope for parents who first learn they might have a child with Down syndrome, to be able rejoice and not regret. That is why we have chosen to raise money for NDSS. They work everyday to not only improve the lives of people with Down syndrome but also educate those who donít yet see how amazing it is to know and love a person with Down syndrome.

In loving memory of our little Mamie Grace.

This personal story was written in 2011 or 12. Since that time, I've dealt with a lot of feelings that I have finally been able to explain. Sadly, it's a journey many parents travel. Please read "Journey of An Ignorant Parent"

National Down Syndrome Society
666 Broadway, 8th Floor. | New York. New York. 10012
Telephone: 800.221.4602 | Fax: 212.979.2873

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