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Welcome to the Donation Page for
Mamie Grace Eynon, Born: 2/19/10 - 5/4/10

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In Memory of Mamie Grace

I was about 12 weeks pregnant with twins when I discovered that one of my babies would be born with Down syndrome. I was immediately told that I could have a selective reduction. A doctor could do a procedure that would end my little girlís life and allow her twin brother to go on. It was a horrible thing to think about while still in shock from the news. The other horrible thing about it-- it should have never been said. Just because she wasn't perfect in their eyes, this person thought it was perfectly okay to suggest.

After a lot of tears and a great deal of thought, we came to peace with our decision to carry on with the pregnancy and embrace both of our children. We knew this little girl would have a huge impact on our sonsí lives and make our family a better one.

In the beginning, we didnít think we would be capable of raising a child with Down syndrome. Boy, were we wrong!

Unfortunately, our society is programmed to believe that people with Down syndrome donít have the same value as others.

We would be lying is we said it was easy to accept our daughter but if we had known more about Down syndrome, our reaction might have been one of joy instead of sadness. Having a child with Down syndrome isnít a curse; it is, as many parents will tell you, a blessing.

Our blessing didnít last. Sweet Mamie Grace died after suffering complications from heart surgery. Our pain is ever-present and my guilt as a mother for not embracing her from the very beginning continues to this day.

It is my hope for parents who first learn they might have a child with Down syndrome, to be able rejoice and not regret. That is why we have chosen to raise money for NDSS. They work everyday to not only improve the lives of people with Down syndrome but also educate those who donít yet see how amazing these people can be.

In loving memory of our little Mamie Grace.

Warm regards,
Elizabeth Manresa and Teddy Eynon

This personal story was written in 2011 or 12. Since that time, I've dealt with a lot of feelings that I have finally been able to explain. This story is a bit different than the one you just read. Please read "Journey of An Ignorant Parent" on

National Down Syndrome Society
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Telephone: 800.221.4602 | Fax: 212.979.2873

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